#LungDisease #PulmonaryEmbolisms #AutoimmuneReaction #PalliativeCare #MedicalTests #LungFunction #CardiopulmonaryExerciseTest #Pulmonologist #Healthcare
Hey there, I’m so sorry to hear about what you’re going through š¢. Dealing with a mystery lung disease can be incredibly scary and confusing, especially when faced with test results that you don’t fully understand. But don’t worry, I’m here to help break down those test results for you and provide some clarity. Let’s dive into what those numbers mean and how they may be impacting your health š©ŗ.
Understanding the Results of the Cardiopulmonary Exercise Stress Test
When it comes to understanding the results of a cardiopulmonary exercise stress test, there can be a lot of technical jargon and numbers that may seem overwhelming at first. But breaking it down into simpler terms can make it easier to grasp. Hereās a breakdown of what those results mean for you:
1. Lung Volume Capacity: What Does That 90% Value Mean?
The technician mentioned that the lung volume capacity value of 90% on the report is technically considered ānormal.ā However, it’s important to note that this value represents a significant decrease from your previous lung function testing in August, where the value was at 118%. So, what does this mean for you?
– The decrease from 118% to 90% indicates a noticeable decline in your lung function since your last testing.
– This drop may be a concerning indication of the progression of your lung disease and the impact it’s having on your respiratory system.
– It’s crucial to discuss these results with your pulmonologist to understand the implications for your health and potential treatment options.
2. Implications for Your Health and Future Treatment
Understanding the significance of the decline in lung volume capacity is essential for determining the next steps in managing your condition.
– A decrease in lung volume capacity can lead to symptoms such as shortness of breath, fatigue, and decreased physical endurance.
– This decline may prompt your healthcare provider to explore further diagnostic tests, such as a lung biopsy, to gain a deeper understanding of the underlying cause of your lung disease.
– Discussing these results with your pulmonologist is vital in developing a comprehensive treatment plan that addresses the progression of your condition and aims to improve your quality of life.
Seeking Answers and Support
Dealing with a mystery lung disease can take a toll not only on your physical health but also on your emotional well-being. It’s essential to seek the support and guidance you need during this challenging time.
– Reach out to your healthcare team to schedule a follow-up consultation to discuss the implications of the test results and any additional questions or concerns you may have.
– Consider joining a support group or seeking counseling to connect with others who may be going through similar experiences and to receive emotional support.
– Don’t hesitate to lean on your loved ones for encouragement and understanding as you navigate the complexities of managing a chronic lung condition.
In Conclusion
Navigating the uncertainties of a mystery lung disease can feel overwhelming, but understanding the meaning of your test results and seeking the necessary support and guidance can help empower you as you face this journey. Keep advocating for your health and don’t hesitate to ask questions or seek clarity from your healthcare team.
Remember, you’re not alone in this, and there are resources and individuals who are dedicated to providing you with the care and assistance you need. Stay strong, and know that there are people rooting for you every step of the way. We’re all here to support you through this challenging time. Take care š.
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What medications do you take? Have you ever taken nitrofurantoin?
I’ll not pretend that I interpret pulmonary tests like this everyday, because I do not, but it would perhaps be helpful for other doctors here if you described your functional status.
> it seems that Iām dying from it.
When you say this, my mind immediately goes to a bed bound person who desaturates doing anything without extra oxygen, not someone with a “normal range peak exercise capacity”
Does your oxygen drop when you walk?
Are you able to do things like walk the dog, clean dishes, make food?
Can you walk through rooms in your house ok?
Can you walk down the street ok?
Can you climb a flight of stairs?
Can you play sports?
For that matter, did you ever do exercise before your pulmonary embolisms and your children (what was your activity like before all this)?
Could you run a mile?
Have you ever run a mile in the past 5 years?
These is the kind of things that help us understand how you actually are. Sometimes testing does that and sometimes it doesn’t.